The National Children’s Hospice Grant, worth £25 million for hospices across the country, is set to end later this year.

The grant funds 10% of Forget Me Not’s overall funding and a further 12% from other statutory sources.

“If there is even the slightest risk that this grant will not be provided in the future, it will be absolutely catastrophic,” Mr Pierce said.

“We want to see real urgency and real pace for children’s hospices to move forward.”

Forget Me Not provides care for babies and children with potentially life-shortening illnesses that goes beyond medical care.

From pregnancy, it includes nursing care, hydrotherapy and end-of-life care.

“When families come to us for help, they are going through the worst time of their lives.” Mr. Pierce continued.

“Families tell us day after day that without our support, they don’t know what they would do.”

He said the help they offer was vital and to think they would be unable to provide it in the future was “pretty scary”.

The charity not only wants the Government to commit to funding continuing, but for it to increase in line with inflation.